The research ecosystem built on patient trust.

Longitudinal, de-identified evidence from consented patient communities across active therapeutic areas. Define a cohort, field a survey, recontact the same patients over time, and build the analysis end to end on the Aurelis platform.

Talk to our team Where it fits your pipeline

Consented at the sourceHIPAA Safe Harbor de-identificationCommunity-governed

Aurelis · cohort explorer DE-IDENTIFIED

Cohort

NeurologyAdults 18+2+ years follow-upOn therapy

1,284patients matched

37care sites

3.4 yrsmedian follow-up

Records contributed per quarterlast 3 years 20232026

Every record arrives with its consent attached, de-identified to HIPAA Safe Harbor.

Illustrative view of the Aurelis analytics console.

Chain of custody

Every record arrives with its consent and its provenance attached

01 A patient or caregiver consents Explicit, separate, and revocable for every research use.

02 The community governs Patient Advocacy Organizations (PAOs) approve each use of the aggregate, on their terms.

03 De-identified to Safe Harbor 45 CFR §164.514(b), with technical and contractual safeguards against re-identification.

04 Provenance you can audit Every record carries its source, its collection date, and the consent version it was gathered under. Any data point traces back to the decision behind it.

From question to evidence, on one platform

01 De-identified data access Research-grade, longitudinal records across active therapeutic areas: EHR-sourced and patient-reported, de-identified to the HIPAA Safe Harbor standard before it ever reaches you.

02 Custom cohort surveys Push targeted instruments to specific cohorts through their trusted PAO channels, then recontact the same consented patients as the question evolves, in follow-up waves or longitudinally. Answers registries cannot reach.

03 Analysis, not just access Our research team works the question with you: cohort discovery, natural-history modeling, treatment-pattern and switching analysis, endpoint selection, and burden-of-illness evidence. You get findings your teams can defend, not a dataset to staff.

Where Aurelis fits your pipeline

Patient-driven evidence, end to end, from protocol design to launch and beyond.

Preclinical Clinical Launch Commercial

Clinical design & development

Patient journey & care gaps

Market access & pricing

Clinical design & development Natural-history baselines, endpoint selection, eligibility modeling, and recruitment through communities that already trust the platform.

Patient journey & care gaps Real treatment pathways, switching behavior, and unmet-need signals, straight from longitudinal records and the reported experience of patients and caregivers.

Market access & pricing Burden-of-illness and outcomes evidence that supports value dossiers, payer conversations, and access strategy.

Evidence that holds up under scrutiny.

Every record on the platform is there because a patient chose to share it and a PAO stewards it. That consent-first chain of custody is what makes the evidence durable.

Request a walkthrough

Explicit, separate consent for every research disclosure

HIPAA Safe Harbor de-identification (45 CFR §164.514(b))

Safeguards against re-identification, technical and contractual

Value shared back with patients and their communities

aurelisINSIGHTS

Connecting patients, caregivers, communities, and research, with patients in control.

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